Accessible Requires Authentication Published by De Gruyter October 18, 2016

Validation of the family needs assessment scale for Colombian families with children with intellectual disability

Viviana Lucía Aya-Gómez, Amalia Alexandra Ovalle Parra, Victoria Cabrera-Garcia, Diana Sthefania Muñoz-Gómez and Claudia Alejandra Duque Romero


This study documents the development and validation of the children’s version of the Family Needs Assessment (FNA) instrument for Colombia. The FNA is a scale that evaluates the needs of families with children with disabilities who are below the age of 18 years. To validate this scale, the research team identified the theoretical background regarding family members’ needs and performed a linguistic adaptation of the scale, which was reviewed to guarantee its validity through cognitive interviews and a pilot study. Results from the exploratory factor analysis (EFA) showed 72 items distributed in a 4-factor solution. Cronbach’s alpha coefficients for each factor and for the overall FNA scale were also estimated. Specifically, alpha computed from the correlation among the 72 items was 0.97 and ranged from 0.85 to 0.95 for the four factors. Findings from this study provided evidence to support the validity of the FNA for families with children with intellectual disability in Colombia. The findings also indicated that the FNA has the potential of contributing to a better understanding of inputs (e.g. needs of families with individuals with disability) with the aim of informing system decisions, enhancing policies, improving services and strengthening family-professional partnerships.


1. Turnbull H, Beegle G, Stowe M. The core concepts of disability policy affecting families who have children with disabilities. Disabil Policy Stud 2001;12:133–43. Search in Google Scholar

2. Lightfoot E, La Liberte T. Parental supports for parents with intellectual and developmental disabilities. Intellec Dev Disabil 2011;49:388–91. Search in Google Scholar

3. Wade C, Llewellyn G, Matthews J. Modeling contextual influences on parents with intellectual disability and their children. Am J Intellect Dev Disabil 2011;116:419–37. Search in Google Scholar

4. Almasri N, Palisano R, Dunst C, Chiarello L, O’Neil M, Polansky M. Profiles of family needs of children and youth with cerebral palsy. Child Care Health Dev 2012;38:798–806. Search in Google Scholar

5. Mercado E, Aizpurúa E, García L. Características, percepciones y necesidades sociales de los niños y niñas con discapacidad y sus familias. Portularia 2012;8:69–80. Search in Google Scholar

6. Naciones Unidas. Convención Internacional sobre los Derechos de las Personas con Discapacidad y Protocolo Facultativo. 2006. Search in Google Scholar

7. Ley Estatutaria 1618. Ley 1618/2013 de 27 de febrero. Diario Oficial No. 48.717 (27-02-2013). Search in Google Scholar

8. Creswell J. Research design: qualitative, quantitative, and mixed methods approaches, 3rd ed. Thousand Oaks, CA: Sage Publications, 2009. Search in Google Scholar

9. Dillman D, Smyth J, Christian L. Internet, mail and mixed-mode surveys: the tailored design method, 3rd ed. Hoboken, NJ: J. Wiley & Sons, Inc., 2009. Search in Google Scholar

10. Michalík J. The quality of life of caregivers who care a child with rare disease – perception of changes as a result of care in the Czech Republic. Procedia Soc Behav Sci 2014;112:1149–59. Search in Google Scholar

11. Hoffman L, Marquis J, Poston D, Summers JA, Turnbull A. Assesing family outcomes: Psychometric evaluation of the Beach Center Family Quality of Life Scale. J Marriage Fam 2006;68:1069–83. Search in Google Scholar

12. Summers J, Hoffman L, Marquis J, Turnbull A, Poston D, Nelson L. Measuring the quality of family-professional partnership in special education services. Except Children 2005;72:65–81. Search in Google Scholar

13. McCabe H. The importance of parent-to-parent support among families of children with autism in the People’s Republic of China. Int J Disabil Dev Ed 2008;55:303–14. Search in Google Scholar

14. Ahmadi A, Sharifi E, Azizi H, Bolouk S, Amrai K. The needs of Iranians families of children with autism spectrum disorder, cross-cultural study. Procedia Soc Behav Sci 2011;15:321–6. Search in Google Scholar

15. Burton-Smith R, McVilly K, Yazbeck M, Parmenter T, Tsutsui T. Service and support needs of Australian carers supporting a family member with disability at home. J Intellect Dev Disabil 2009;34:239–47. Search in Google Scholar

16. Chiu C, Turnbull A, Summers J. What families need: validation of the family needs assessment for Taiwanese families of children with intellectual disability and developmental delay. Res Pract Persons Severe Disabil 2013;38:247–58. Search in Google Scholar

17. Zuna N, Summers JA, Turnbull AP, Xiaoyi Hu SX. Theorizing about family quality of life. In: Kober R, editor. Enhancing the quality of life of people with intellectual disability. From theory to practice. Dordrecht, The Netherlands: Springer, 2010:241–78. Search in Google Scholar

18. Verdugo M, Córdoba L, Gómez J. Spanish adaptation and validation of the family quality of life survey. J Intell Disabil Res 2005;49:794–8. Search in Google Scholar

19. Tabachnick B, Fidell L. Using multivariate statistics, 5th ed. Boston: Allyn and Bacon, 2007. Search in Google Scholar

20. Cohen R, Swerdlik M. Pruebas Y Evaluación Psicológicas. Introducción a las pruebas y a la medición. Ed. México: McGraw-Hill, 2001. Search in Google Scholar

21. Beatty PC, Willis GB. Research synthesis: the practice of cognitive interviewing. Public Opin Quart 2007;71:287–311. Search in Google Scholar

22. DeVellis R. Scale development: theory and applications, 3rd ed. Thousand Oaks, CA: Sage Publications, 2012. Search in Google Scholar

23. Nunnally J, Bernstein I. Psychometric theory, 3rd ed. New York, NY: McGraw-Hill, Inc, 1994. Search in Google Scholar

24. Cea D’Ancona MA. Análisis multivariable. Teoría y práctica en la investigación social. Madrid: Síntesis, 2002. Search in Google Scholar

25. Frey, B. Statistics hacks, 1st ed. Sebastopol: O’Reilly. Greenstein, T. N., & Davis, S. N., 2012. Search in Google Scholar

26. Buitrago E, Ortiz R, Eslava A. Necesidades generales de los cuidadores de las personas en situación de discapacidad. Investigación en Enfermería Imagen y Desarrollo 2010;12:59–77. Search in Google Scholar

27. Fajardo RE. Caracterización del riesgo familiar total de las familias con adulto mayor ubicadas en la Comuna Seis del municipio de Ibagué. Salud Uninorte 2008;24:248–57. Search in Google Scholar

28. Akmese P, Mutlu A, Kayhan N. Perceptions of family needs in mothers of children with physical disabilities. Procedia Soc Behav Sci 2012;42:1122–4. Search in Google Scholar

29. Giné C, Balcells-Balcells A, Simó-Pinatella D, Font Roura J, Pro-Hernández M, MasMestre J, et al. Necesidades de apoyo de las familias de personas con discapacidad intelectual de Cataluya. Revista Española sobre Discapacidad Intelectual 2011;42:31–49. Search in Google Scholar

30. Samuel P, Hobden K, LeRoy B, Lacey K. Analysing family service needs of typically under- served families in the USA. J Intell Disabil Res 2012;56:111–28. Search in Google Scholar

31. Turnbull AA, Turnbull HR, Erwin EJ, Soodak LC, Shogren KA. Families, professionals, and exceptionality: positive outcomes through partnerships and trust, 6th ed. Upper Saddle River, NJ: Pearson, 2011. Search in Google Scholar

32. Simkiss D, Blackburn C, Mukoro F, Read J, Spencer N. Childhood disability and socio-economic circumstances in low and middle income countries: systematic review. BMC Pediatr 2011;11:119. Search in Google Scholar

33. Aya-Gómez V, Córdoba L. Asumiendo juntos los retos: Calidad de vida en familias de jóvenes con discapacidad intelectual. Revista Facultad de Medicina Universidad Nacional de Colombia 2013;61:80–90. Search in Google Scholar

34. Córdoba L, Gómez J, Verdugo M. Calidad de vida familiar en personas con discapacidad: un análisis comparativo. Universitas Psychologica 2008;7:369–83. Search in Google Scholar

35. Córdoba L, Mora A, Bedoya A, Verdugo M. Familias de adultos con discapacidad intelectual en Cali, Colombia, desde el modelo de calidad de vida. Psykhe 2007;16:29–42. Search in Google Scholar

36. Mora A, Córdoba L, Bedoya A, Verdugo M. Características de la calidad de vida en familias con un adulto con discapacidad intelectual DI/(RM) en la ciudad de Cali, Colombia. Diversitas Perspectivas en Psicología 2007;3:37–54. Search in Google Scholar

37. Resch J, Mireles G, Benz M, Grenwelge C, Peterson P, Zhang D. Giving parents a voice: a qualitative study of the challenges experienced by parents of children with disabilities. Rehabil Psychol 2010;55:139–50. Search in Google Scholar

38. Cho S, Kyoung S. Predictors of life satisfaction among Caregivers of children with developmental disabilities in South Korea. Asian Soc Sci 2015;11:154–66. Search in Google Scholar

39. Chiu C. Family needs and family quality of life for Taiwanese families of children with intellectual disability and developmental delay [Doctoral Dissertation]. University of Kansas, Lawrence, KS, 2013. Search in Google Scholar

Received: 2016-6-21
Accepted: 2016-8-30
Published Online: 2016-10-18
Published in Print: 2017-8-28

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