Introduction
The new knowledge from the Human Genome Project has created much interest and anticipation of improved health for the population. A significant aspect of this has been the expanded use of genetic testing to identify whether a person has the affected gene and is therefore at risk of developing a particular condition or, in the case of conditions inherited on an autosomal dominant basis, establishing that a person is presymptomatic of a condition that they will almost certainly develop. Whilst knowledge of genetic risk can be of great benefit, in allowing life-planning in the knowledge of that risk, and in some cases, taking of preventative measures, concerns have been generated about the availability of genetic test information, and the use that commercial third parties may seek to make of this information.
© Walter de Gruyter