Health Humanities Reader

Health Humanities Reader

With contributions by: Arthur W. Frank , David H. Flood , Rhonda L. Soricelli , Lisa Keränen , Michael Sappol , Shelley Wall , Martha Stoddard Holmes , Joseph N. Straus , Martin F. Norden , Lisa I. Iezzoni , Felicia Cohn , Martha Montello , John Lantos , Amy Haddad , Rebecca Garden , Mark Clark , Howard Brody , Rebecca Hester , Jack Coulehan , Rosemarie Tong , Sander L. Gilman , Bernice Hausman , Gretchen A. Case , Allen Peterkin , Alice Dreger , Marjorie Levine-Clark , Susan M. Squier , Rafael Campo , Sayantani DasGupta , Jonathan M. Metzl , Daniel Goldberg , Maren Grainger-Monsen , Thomas R. Cole , Benjamin Saxton , E. Ann Kaplan , Jerald Winakur , Bradley Lewis , Anne Hudson Jones , Michael Rowe , Ian Williams , Tod Chambers , Raymond C. Barfield , Lucy Selman , Jeffrey P. Bishop , Audrey Shafer , Catherine Belling , Paul Root Wolpe , Allison B. Kavey , Jeff Nisker , Julie M. Aultman , Michael Blackie , Erin Gentry Lamb , Alan Bleakley and Jay Baruch
Edited by: Therese Jones , Delese Wear and Lester D. Friedman
Preface by: Mark Vonnegut

Rutgers University Press | 2014

DOI: https://doi.org/10.36019/9780813562483

Overview
Contents

About this book

Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice.

In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. Friedman have assembled fifty-four leading scholars, educators, artists, and clinicians to survey the rich body of work that has already emerged from the field—and to imagine fresh approaches to the health humanities in these original essays. The collection’s contributors reflect the extraordinary diversity of the field, including scholars from the disciplines of disability studies, history, literature, nursing, religion, narrative medicine, philosophy, bioethics, medicine, and the social sciences.

With warmth and humor, critical acumen and ethical insight, Health Humanities Reader truly humanizes the field of medicine. Its accessible language and broad scope offers something for everyone from the experienced medical professional to a reader interested in health and illness.

Author information

THERESE JONES is an associate professor at the Center for Bioethics and Humanities and director of the Arts and Humanities in Healthcare Program at the University of Colorado Anschutz Medical Campus. She is the editor of the Journal of Medical Humanities, and her extensive publications include Sharing the Delirium: Second Generation AIDS Plays and Performances.

DELESE WEAR is a professor of behavioral and community health sciences at Northeast Ohio Medical University. She has written and edited numerous books, including Educating for Professionalism: Creating a Culture of Humanism in Medical Education.

LESTER D. FRIEDMAN is chair of media and society at Hobart and William Smith Colleges. A leading scholar on media representations of medicine, he is the editor of Cultural Sutures: Medicine and Media and co-editor of Picture of Health: Medical Ethics and the Movies.

Reviews

"This is a landmark volume that sets the standard for any future collection in medical/health humanities. It is by turns authoritative, funny, edgy, creative and personal—sometimes all in one piece.”

— Thomas R. Cole, Director, McGovern Center for Humanities and Ethics, University of Texas-Houston Medical School

"It's about time! The field of medical humanities has been waiting for a reader, and this one is it. With an excellent array of essays in appropriate topics by top people in the field, this book should set the standard for the next ten years. It will prove fascinating to undergraduates, graduate students in both the humanities and the health sciences, and to the general public and particularly those who are or will be patients—which of course is everyone."

— Lennard J. Davis, editor of The Disability Studies Reader

"This bold, intelligent, and vitally comprehensive collection is a truly interdisciplinary achievement and an indispensible resource.Through twelve judiciously selected thematic clusters, Rutgers’s Health Humanities Reader consolidates this new subfield by capturing both the complexity and excitement of health humanities scholarship. An essential tool with practical applications both inside and outside the classroom."

— Andrea Charise, PhD, assistant professor of health studies, University of Toronto, Scarborough

"[This book] consists of nearly 50 chapters, some of which deal with classic medical humanities topics, such as the notions of health and disease and the theory of the body. The majority of the book centers on more contemporary—some would say postmodern—issues, such as gender and sexuality, disability, and aging. Recommended."

— Choice

Frontmatter Free access PDF PDF	i
Contents Free access PDF PDF	v
Foreword: Too Long Too Short Mark Vonnegut Free access PDF PDF	ix
Acknowledgments Free access PDF PDF	xiii
Introduction: The Why, The What, And The How Of The Medical/Health Humanities Lester D. Friedman, Delese Wear and Therese Jones Access restricted Content is available PDF PDF	1
Part I. Disease And Illness
Chapter 1. Being A Good Story: The Humanities As Therapeutic Practice Arthur W. Frank Access restricted Content is available PDF PDF	13
Chapter 2. Illuminating The It, Thee, And We Of Disease And Illness: The Metamorphosis And Related Works Rhonda L. Soricelli and David H. Flood Access restricted Content is available PDF PDF	26
Chapter 3. “This Weird, Incurable Disease”: Competing Diagnoses In The Rhetoric Of Morgellons Lisa Keränen Access restricted Content is available PDF PDF	36
Chapter 4. My Quest For Health Shelley Wall and Michael Sappol Access restricted Content is available PDF PDF	50
Part II. Disability
Chapter 5. Disability In Two Doctor Stories Martha Stoddard Holmes Access restricted Content is available PDF PDF	63
Chapter 6. Music And Disability Joseph N. Straus Access restricted Content is available PDF PDF	77
Chapter 7. American Narrative Films And Disability: An Uneasy History Martin F. Norden Access restricted Content is available PDF PDF	87
Chapter 8. Standout Lisa I. Iezzoni Access restricted Content is available PDF PDF	97
Part III. Death And Dying
Chapter 9. When The Doctor Is Not God: The Impact Of Religion On Medical Decision Making At The End Of Life Felicia Cohn Access restricted Content is available PDF PDF	103
Chapter 10. Postmodern Death And Dying: A Literary Analysis John Lantos and Martha Montello Access restricted Content is available PDF PDF	113
Chapter 11. Second Degree Block: Poem And Commentary Amy Haddad Access restricted Content is available PDF PDF	122
Part IV. Patient- Professional Relationships
Chapter 12. Social Studies: The Humanities, Narrative, And The Social Context Of The Patient-Professional Relationship Rebecca Garden Access restricted Content is available PDF PDF	127
Chapter 13. Humanities And The Medical Home Rebecca Hester, Howard Brody and Mark Clark Access restricted Content is available PDF PDF	138
Chapter 14. Occupational Medicine Jack Coulehan Access restricted Content is available PDF PDF	149
Part V. The Body
Chapter 15. The Virtues Of The Imperfect Body Rosemarie Tong Access restricted Content is available PDF PDF	155
Chapter 16. Seeing Bodies In Pain Sander L. Gilman Access restricted Content is available PDF PDF	171
Chapter 17. Public Fetuses Bernice L. Hausman Access restricted Content is available PDF PDF	186
Chapter 18. More Body: A Performance For Five (Or More) Bodies Gretchen A. Case Access restricted Content is available PDF PDF	196
Part VI. Gender And Sexuality
Chapter 19. Adult Intake Form Allan Peterkin Access restricted Content is available PDF PDF	203
Chapter 20. What Is Sex For? Or, The Many Uses Of The Vag Alice Dreger Access restricted Content is available PDF PDF	207
Chapter 21. “I Always Prefer The Scissors”: Isaac Baker Brown And Feminist Histories Of Medicine Marjorie Levine-Clark Access restricted Content is available PDF PDF	215
Chapter 22. Comics In The Health Humanities: A New Approach To Sex And Gender Education Susan M. Squier Access restricted Content is available PDF PDF	226
Chapter 23. I Am Gula, Hear Me Roar: On Gender And Medicine Rafael Campo Access restricted Content is available PDF PDF	242
Part VII. Race And Class
Chapter 24. Listening As Freedom: Narrative, Health, And Social Justice Sayantani DasGupta Access restricted Content is available PDF PDF	251
Chapter 25. Race And Mental Health Jonathan M. Metzl Access restricted Content is available PDF PDF	261
Chapter 26. Law’S Hand In Race, Class, And Health Inequities: On The Humanities And The Social Determinants Of Health Daniel Goldberg Access restricted Content is available PDF PDF	268
Chapter 27. The Rooms Of Our Souls Maren Grainger-Monsen Access restricted Content is available PDF PDF	277
Part VIII. Aging
Chapter 28. “Old Age Isn’T A Battle, It’S A Massacre”: Reading Philip Roth’S Everyman Benjamin Saxton and Thomas R. Cole Access restricted Content is available PDF PDF	285
Chapter 29. “Do You Remember Me?” Constructions Of Alzheimer’S Disease In Literature And Film E. Ann Kaplan Access restricted Content is available PDF PDF	295
Chapter 30. Love In The Time Of Dementia Jerald Winakur Access restricted Content is available PDF PDF	304
Part IX. Mental Illness
Chapter 31. Narrating Our Sadness, With A Little Help From The Humanities Brad Lewis Access restricted Content is available PDF PDF	311
Chapter 32. Teaching Narratives Of Mental Illness Anne Hudson Jones Access restricted Content is available PDF PDF	321
Chapter 33. Community Psychiatry And The Medical Humanities Michael Rowe Access restricted Content is available PDF PDF	330
Chapter 34. Culpability Ian Williams Access restricted Content is available PDF PDF	341
Part X. Spirituality And Religion
Chapter 35. Rites Of Bioethics Tod Chambers Access restricted Content is available PDF PDF	365
Chapter 36. Health And Humanities: Spirituality And Religion Lucy Selman and Raymond C. Barfield Access restricted Content is available PDF PDF	376
Chapter 37. Scientia Mortis And The Ars Moriendi: To The Memory Of Norman Jeffrey P. Bishop Access restricted Content is available PDF PDF	387
Chapter 38. Meditations Of An Anesthesiologist: Poem And Commentary Audrey Shafer Access restricted Content is available PDF PDF	403
Part XI. Science And Technology
Chapter 39. Andromeda’S Futures: A Story Of Humanities, Technology, Science, And Art Catherine Belling Access restricted Content is available PDF PDF	409
Chapter 40. Knowing And Seeing: Reconstructing Frankenstein Paul Root Wolpe Access restricted Content is available PDF PDF	419
Chapter 41. A Brief History Of Love: A Rationale For The History Of Epidemics Allison B. Kavey Access restricted Content is available PDF PDF	430
Chapter 42. Calcedonies Jeff Nisker Access restricted Content is available PDF PDF	442
Part XII. Health Professions Education
Chapter 43. Teaching Autism Through Naturalized Narrative Ethics: Closing The Divide Between Bioethics And Medical Humanities Julie M. Aultman Access restricted Content is available PDF PDF	479
Chapter 44. Courting Discomfort In An Undergraduate Health Humanities Classroom Erin Gentry Lamb and Michael Blackie Access restricted Content is available PDF PDF	490
Chapter 45. The Medical Humanities In Medical Education: Toward A Medical Aesthetics Of Resistance Alan Bleakley Access restricted Content is available PDF PDF	501
Chapter 46. In Defense Of Cheaper Stethoscopes Jay Baruch Access restricted Content is available PDF PDF	511
References Access restricted Content is available PDF PDF	517
Notes On Contributors Access restricted Content is available PDF PDF	569
Index Access restricted Content is available PDF PDF	575

Health Humanities Reader

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