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International Journal of Adolescent Medicine and Health

Editor-in-Chief: Merrick, Joav

Editorial Board: Birch, Diana ML / Blum, Robert W. / Greydanus, MD, Dr. HC (Athens), Donald E. / Hardoff, Daniel / Kerr, Mike / Levy, Howard B / Morad, Mohammed / Omar, Hatim A. / de Paul, Joaquin / Rydelius, Per-Anders / Shek, Daniel T.L. / Sher, Leo / Silber, Tomas J. / Towns, Susan / Urkin, Jacob / Verhofstadt-Deneve, Leni / Zeltzer, Lonnie / Tenenbaum, Ariel


CiteScore 2018: 0.79

SCImago Journal Rank (SJR) 2018: 0.350
Source Normalized Impact per Paper (SNIP) 2018: 0.476

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2191-0278
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Volume 31, Issue 3

Issues

The effects of music therapy on transition outcomes in adolescents and young adults with sickle cell disease

Samuel N. Rodgers-Melnick
  • Corresponding author
  • Department of Art and Music Therapy, University Hospitals Seidman Cancer Center, MT-BC, 11100 Euclid Avenue, Cleveland, OH 44106, USA, Phone: (216) 844-7727; Fax: (216) 201-6220
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/ Tara J. Griest Pell
  • Department of Art and Music Therapy, University Hospitals Seidman Cancer Center, Cleveland, OH, USA
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/ Deforia Lane
  • Department of Art and Music Therapy, University Hospitals Seidman Cancer Center, Cleveland, OH, USA
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/ Coretta Jenerette / Pingfu Fu
  • Department of Epidemiology and Biostatistics, Case Western Reserve University, Cleveland, OH, USA
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/ Seunghee Margevicius
  • Department of Epidemiology and Biostatistics, Case Western Reserve University, Cleveland, OH, USA
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/ Jane A. Little
  • Department of Medicine-Hematology, University Hospitals Cleveland Medical Center, Cleveland, OH, USA
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Published Online: 2017-08-05 | DOI: https://doi.org/10.1515/ijamh-2017-0004

Abstract

Background

The Build, Educate, Advance, Transition, in Sickle cell disease (BEATS) music therapy program was developed to address health challenges faced by adolescents/young adults (AYA) with sickle cell disease (SCD) during the transition to adult medical care.

Objective

The purpose of this study was to investigate the effects of BEATS on self-efficacy, trust, knowledge about SCD, and adherence in adolescents/young adults (AYA) with SCD.

Subjects

Thirty AYA with SCD, 18–23 years old, recruited from an adult SCD clinic agreed to participate in four BEATS sessions over 1 year.

Methods

Self-efficacy, trust and SCD knowledge were measured prospectively at baseline and months 3, 6, 9, and 12. Adherence to clinic appointments and healthcare utilization were measured retrospectively from medical records. A repeated measures linear mixed-effect model with compound symmetry covariance structure was used to fit the data.

Results

BEATS participants demonstrated a significant improvement in SCD knowledge (p = 0.0002) compared to baseline, an increase in acute care clinic, but not emergency department, utilization (p = 0.0056), and a non-significant improvement in clinic attendance (p = 0.1933). Participants’ subjective evaluations revealed a positive response to BEATS. There were no significant changes in self-efficacy, trust, hospital admissions, or blood transfusion adherence.

Conclusion

Culturally tailored, developmentally appropriate music therapy transition interventions can concretely improve SCD knowledge and may improve transition for AYA with SCD.

This article offers supplementary material which is provided at the end of the article.

Keywords: adherence; sickle cell disease; music therapy; transition; self-efficacy; trust

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About the article

Received: 2017-01-05

Accepted: 2017-05-10

Published Online: 2017-08-05


Funding Sources: Supported by the Kulas Foundation, Cleveland, OH (grant number K14026M).

Conflicts of interest: There are no real, perceived, or potential conflicts of interest among any of the authors. The Kulas Foundation had no role in the 1) study design; 2) collection, analysis and interpretation of data; 3) the writing of the report; or 4) the decision to submit the manuscript for publication. Samuel N. Rodgers-Melnick, MT-BC wrote the first draft of this manuscript, and no form of payment was provided to anyone for the production of this manuscript.


Citation Information: International Journal of Adolescent Medicine and Health, Volume 31, Issue 3, 20170004, ISSN (Online) 2191-0278, DOI: https://doi.org/10.1515/ijamh-2017-0004.

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