Jump to ContentJump to Main Navigation
Show Summary Details
More options …

International Journal of Adolescent Medicine and Health

Editor-in-Chief: Merrick, Joav

Editorial Board: Birch, Diana ML / Blum, Robert W. / Greydanus, MD, Dr. HC (Athens), Donald E. / Hardoff, Daniel / Kerr, Mike / Levy, Howard B / Morad, Mohammed / Omar, Hatim A. / de Paul, Joaquin / Rydelius, Per-Anders / Shek, Daniel T.L. / Sher, Leo / Silber, Tomas J. / Towns, Susan / Urkin, Jacob / Verhofstadt-Deneve, Leni / Zeltzer, Lonnie / Tenenbaum, Ariel

CiteScore 2018: 0.79

SCImago Journal Rank (SJR) 2018: 0.350
Source Normalized Impact per Paper (SNIP) 2018: 0.476

See all formats and pricing
More options …
Volume 31, Issue 4


(Health-related) quality of life and psychosocial factors in adolescents with chronic disease: a systematic literature review

Teresa Santos
  • Corresponding author
  • William James Center of Research, ISPA-Instituto Universitário, Ciências Psicológicas, Sociais e da Vida, Rua Jardim do Tabaco, no 34, 1149-041 Lisboa, Portugal, Phone: +351 218811700; Mobile: +351 966142393
  • FMH, Faculdade de Motricidade Humana (Projecto Aventura Social-Social Adventure Team)/Universidade de Lisboa, Lisboa, Portugal
  • ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal
  • Email
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Margarida Gaspar de Matos
  • FMH, Faculdade de Motricidade Humana (Projecto Aventura Social-Social Adventure Team)/Universidade de Lisboa, Lisboa, Portugal
  • ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal
  • William James Center for Research, ISPA - Instituto Universitário, Lisboa, Portugal
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Celeste Simões
  • FMH, Faculdade de Motricidade Humana (Projecto Aventura Social-Social Adventure Team)/Universidade de Lisboa, Lisboa, Portugal
  • ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Isabel Leal / Maria do Céu Machado
  • FM, Faculdade de Medicina/Universidade de Lisboa, Lisboa, Portugal
  • Departamento de Pediatria do Hospital de Santa Maria, CAML, Centro Académico de Medicina de Lisboa, Lisboa, Portugal
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
Published Online: 2017-11-23 | DOI: https://doi.org/10.1515/ijamh-2017-0037



Research on living with a chronic disease (CD) in adolescence is increasing. However, studies on the relevance of psychosocial factors are still needed. The present review, focuses on the impact of living with a CD in adolescence on on quality of life (QoL), health-related quality of life (HRQoL) and psychosocial factors.


A literature review of articles identified through PubMed, PsycINFO and PsycARTICLES (these last two ones comprise the Ebsco Host platform) and original peer-reviewed research papers, published between 2010 and 2015, with no restrictions regarding the format/source of interventions, randomized controlled trials (RCTs) or types of comparisons were included.


Eighteen papers met the inclusion criteria and contradictory results were found: the majority showed a significantly higher risk of impairment on QoL/HRQoL and psychosocial factors, whereas others reported a significantly lower risk of impairment (highlighting possible protective factors), or no significant differences. Heterogeneity in the assessment procedures and substantial difficulties in considering adolescence as a single and independent age group, were also noted.


The higher risk of impairment and the heterogeneity observed between cohorts, reinforce the need to work towards consensual procedures, which allow for more accurate comparisons among studies. Additionally, it conveys the challenge to find more effective interventions. Furthermore, it is highly suggested to routinely assess HRQoL/psychosocial factors within an individualized framework, to considerer adolescents as a single/independent group, to emphasize potential protective factors, and, to increase youth’s participation in their own adaptation process and in health promotion in general. These are possible future directions that could enable multidisciplinary responses to improve HRQoL and psychosocial care in adolescents with a CD.

This article offers supplementary material which is provided at the end of the article.

Keywords: adolescents; chronic disease; quality of life; health-related quality of life; psychosocial factors


  • [1]

    Sattoe JN, Bal MI, Roelofs PD, Bal R, Miedema HS, Van staa A. Self-management interventions for young people with chronic conditions: a systematic overview. Patient Educ Couns. 2015;98:704–15.CrossrefPubMedGoogle Scholar

  • [2]

    Compas BE, Jaser SS, Dunn MJ, Rodriguez EM. Coping with chronic illness in childhood and adolescence. Annu Rev Clin Psychol. 2012;8:455–80.CrossrefPubMedGoogle Scholar

  • [3]

    Verhoof E, Maurice-stam H, Heymans H, Grootenhuis M. Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability. Acta Paediatr. 2012;101:e19–26.CrossrefPubMedGoogle Scholar

  • [4]

    Kourkoutas E, Georgiadi M, Plexousakis S. Quality of life of children with chronic illnesses: a review of the literature. Procedia Soc Behav Sci. 2010;2:4763–7.CrossrefGoogle Scholar

  • [5]

    Payot A, Barrington KJ. The quality of life of young children and infants with chronic medical problems: review of the literature. Curr Probl Pediatr Adolesc Health Care. 2011;41:91–101.CrossrefPubMedGoogle Scholar

  • [6]

    Petersen-ewert C, Erhart M, Ravens-sieberer U. Assessing health-related quality of life in European children and adolescents. Neurosci Biobehav Rev. 2011;35:1752–6.CrossrefPubMedGoogle Scholar

  • [7]

    Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes. 2007;5:43.CrossrefPubMedGoogle Scholar

  • [8]

    WHO – World Health Organization. Programme on Mental Health, WHOQoL, Measuring Quality of Life. 1997. Available at http://www.who.int/mental_health/media/68.pdf.Google Scholar

  • [9]

    Wallander JL, Schmitt M, Koot HM. Quality of life measurement in children and adolescents: issues, instruments, and applications. J Clin Psychol. 2001;57:571–85.PubMedCrossrefGoogle Scholar

  • [10]

    Cantrell MA, Kelly MM. Health-related quality of life for chronically ill children. MCN Am J Matern Child Nurs. 2015;40:24–31.PubMedCrossrefGoogle Scholar

  • [11]

    CDC - Centers for Disease Control and Prevention. Health-related quality of life. 2012. Available at http://www.cdc.gov/hrqol/.Google Scholar

  • [12]

    de Civita M, Regier D, Alamgir AH, Anis AH, Fitzgerald MJ, Marra CA. Evaluating health-related quality-of-life studies in paediatric populations: some conceptual, methodological and developmental considerations and recent applications. Pharmacoeconomics. 2005;23:659–85.CrossrefPubMedGoogle Scholar

  • [13]

    Eiser C, Morse R. A review of measure of quality of life in children with chronic illness. Arch Dis Child. 2001;84:205–211.CrossrefPubMedGoogle Scholar

  • [14]

    Gaspar T, Ribeiro JL, Matos MG, Leal I, Ferreira A. Health-related quality of life in children and adolescents: subjective well-being. Span J Psychol. 2012;15:177–86.PubMedCrossrefGoogle Scholar

  • [15]

    Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part I: developmental issues. Arch Dis Child. 2004;89:938–42.CrossrefPubMedGoogle Scholar

  • [16]

    DeSalvo KB, Bloser N, Reynolds K, He J, Muntner PJ. Mortality prediction with a single general self-rated health question. A meta-analysis. J Gen Intern Med. 2006;21:267–75.CrossrefPubMedGoogle Scholar

  • [17]

    Combs-Orme T, Helfinger CA, Simpkins C. Comorbidity of mental health problems and chronic health conditions in children. J Emot Behav Disord. 2002;2:116–25.Google Scholar

  • [18]

    Barlow JH, Ellard DR. The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child Care Health Dev. 2006;32:19–31.PubMedCrossrefGoogle Scholar

  • [19]

    Barros L, Matos MG, Batista-Foguet J. Chronic diseases, Social context and adolescent health: results of the Portuguese National Health Behaviour in School-Aged Children Survey. RBTC/BJCT. 2008;4 ISNN 18085687.Google Scholar

  • [20]

    Lee SL, Cheung YF, Wong HS, Leung TH, Lam TH, Lau YL. Chronic health problems and health-related quality of life in Chinese children and adolescents: a population-based study in Hong Kong. BMJ Open. 2013;3:e001183.CrossrefGoogle Scholar

  • [21]

    Stansfeld S, Rasul F. Psychosocial factors, depression and illness. In: Steptoe A., editors. Depression and physical illness. Cambridge: Cambridge University Press, 2007:19–52.Google Scholar

  • [22]

    Kojima M, Kojima T, Ishiguro N, Oguchi T, Oba M, Tsuchiya H, Psychosocial factors, disease status, and quality of life in patients with rheumatoid arthritis. J Psychosom Res. 2009;67:425–31.CrossrefPubMedGoogle Scholar

  • [23]

    WHO. Primary health care. Report of the International Conference on Primary Health Care, Alma-Ata, USSR, 6–12 September 1978, jointly sponsored by the World Health Organization and the United Nations Children’s Fund. Geneva: World Health Organization (Health for All Series, No. 1), 1978.Google Scholar

  • [24]

    WHO. Measurement of quality of life in children: report of a WHO/IACAPAP Working Party. London, UK: World Health Organization, 1993.Google Scholar

  • [25]

    The World Health Organization Quality of Life Assessment Group - WHOHRQoL. Development of the WHOQOL: rationale and current status. Int J Ment Health. 1994;23:24–56.Google Scholar

  • [26]

    de Ridder D, Geenen R, Kuijer R, Van Middendorp H. Psychological adjustment to chronic disease. Lancet. 2008;372:246–55.PubMedCrossrefGoogle Scholar

  • [27]

    Health. 2020: A European policy framework and strategy for the 21st century. Geneva, Switzerland: World Health Organization, 2013.Google Scholar

  • [28]

    Marmot M, Allen J, Bell R, Bloomer E, Goldblatt P. Consortium for the European review of social determinants of health and the health divide. WHO European review of social determinants of health and the health divide. Lancet. 2012;380:1011–29.CrossrefPubMedGoogle Scholar

  • [29]

    Pulkki-Råback L, Elovainio M, Hakulinen C, Lipsanen J, Hintsanen M, Jokela M, Cumulative effect of psychosocial factors in youth on ideal cardiovascular health in adulthood: the Cardiovascular Risk in Young Finns Study. Circulation. 2015;131:245–53.CrossrefPubMedGoogle Scholar

  • [30]

    Watson AR. Psychosocial support for children and families requiring renal replacement therapy. Pediatr Nephrol. 2014;29:1169–74.CrossrefPubMedGoogle Scholar

  • [31]

    Simões C, Matos MG, Lebre P, Antunes M. The impact of cumulative risk on adolescents: How it acts on different outcomes and which assets can moderate it. In: Ionescu S, Tomita M, Cace S, editors. The Second World Congress on Resilience: From Person to Society. Bologna: Medimond - International Proceedings, 2014:101–6.Google Scholar

  • [32]

    Van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. J Am Med Assoc. 2007;297:2741–51.CrossrefGoogle Scholar

  • [33]

    Denny S, de Silva M, Fleming T, Clark T, Merry S, Ameratunga S, The prevalence of chronic health conditions impacting on daily functioning and the association with emotional well-being among a national sample of high school students. J Adolesc Health. 2014;54:410–5.PubMedCrossrefGoogle Scholar

  • [34]

    Fenton N, Ferris M, Ko Z, Javalkar K, Hooper SR. The relationship of health care transition readiness to disease-related characteristics, psychosocial factors, and health care outcomes: preliminary findings in adolescents with chronic kidney disease. J Pediatr Rehabil Med. 2015;8:13–22.PubMedGoogle Scholar

  • [35]

    Bronfenbrenner U. Making human beings human: bioecological perspectives on human development. Thousand Oaks, CA: Sage, 2005.Google Scholar

  • [36]

    Von Mackensen S, Campos IG, Acquadro C, Strandberg-larsen M. Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents. Haemophilia. 2013;19:e73–83.CrossrefPubMedGoogle Scholar

  • [37]

    Michaud PA, Suris JC, Viner R. The adolescent with a chronic condition. Part II: healthcare provision. Arch Dis Child. 2004;89:943–9.PubMedCrossrefGoogle Scholar

  • [38]

    Mazur J, Sentenac M, Brooks F, Małkowska-Szkutnik A, Gajewski J, Gavin A. Burden of chronic health conditions in adolescence measured by school surveys. [Obciążenie chorobami przewlekłymi W okresie dorastania mierzone na podstawie Szkolnych badań ankietowych]. Med Wieku Rozwoj. 2013;XVII:157–164.Google Scholar

  • [39]

    Miauton L, Narring F, Michaud PA. Chronic illness, life style and emotional health in adolescence: results of a cross-sectional survey on the health of 15–20-year-olds in Switzerland. Eur J Pediatr. 2003;162:682–9.CrossrefPubMedGoogle Scholar

  • [40]

    Sartain SA, Clarke CL, Heyman R. Hearing the voices of children with chronic illness. J Adv Nurs. 2000;32:913–21.PubMedGoogle Scholar

  • [41]

    Young NL, Varni JW, Snider L, McCormick A, Sawatzky B, Scott M, The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL). J Clin Epidemiol. 2009;62:314–20.CrossrefPubMedGoogle Scholar

  • [42]

    Harding L. Children’s quality of life assessments: a review of genetic and health-related quality of life measures completed by children and adolescents. Clin Psychol Psychother. 2001;8:79–96.CrossrefGoogle Scholar

  • [43]

    Carona C, Silva N, Moreira H. Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines. Expert Rev Pharmacoecon Outcomes Res. 2015;15:47–70.PubMedCrossrefGoogle Scholar

  • [44]

    Brunner HI, Klein-Gitelman MS, Miller MJ, Trombley M, Baldwin N, Kress A, Health of children with chronic arthritis: relationship of different measures and the quality of parent proxy reporting. Arthritis Rheum. 2004;51:763–73.PubMedCrossrefGoogle Scholar

  • [45]

    Varni JW, Burwinkle TM, Lane MM. Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health Qual Life Outcomes. 2005;3:34.PubMedCrossrefGoogle Scholar

  • [46]

    Uzark K, King E, Cripe L, Spicer R, Sage J, Kinnett K, Health-related quality of life in children and adolescents with Duchenne muscular dystrophy. Pediatrics. 2012;130:e1559–66.PubMedCrossrefGoogle Scholar

  • [47]

    Carona C, Crespo C, Silva N, Lopes AF, Canavarro MC, Bullinger M. Examining a developmental approach to health-related quality of life assessment: psychometric analysis of DISABKIDS generic module in a Portuguese sample. Vulnerable Child Youth Stud. 2013;8:243–57.CrossrefGoogle Scholar

  • [48]

    Sprinthall N, Collins W. Adolescent psychology. A developmental view, 2nd ed. New York, NY: McGraw-Hill Inc, 1988.Google Scholar

  • [49]

    Sprinthall R, Oja S, Sprinthall N. Educational psychology: a developmental approach, 7th ed. Boston, MA: McGraw-Hill, 1998.Google Scholar

  • [50]

    Taylor RM, Gibson F, Franck LS. A concept analysis of health-related quality of life in young people with chronic illness. J Clin Nurs. 2008;17:1823–33.PubMedCrossrefGoogle Scholar

  • [51]

    Sawyer MG, Reynolds KE, Couper JJ, French DJ, Kennedy D, Martin J, Health-related quality of life of children and adolescents with chronic illness: a two-year prospective study. Qual Life Res. 2004;13:1309–19.CrossrefPubMedGoogle Scholar

  • [52]

    Liberati A, Altman DG, Tetzlaff J, The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: explanation and elaboration. Br Med J. 2009;339:b2700.CrossrefGoogle Scholar

  • [53]

    Greenley RN, Hommel KA, Nebel J, Raboin T, Li SH, Simpson P, A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease. J Pediatr Psychol. 2010;35:857–69.PubMedCrossrefGoogle Scholar

  • [54]

    Manning JC, Hemingway P, Redsell SA. Long-term psychosocial impact reported by childhood critical illness survivors: a systematic review. Nurs Crit Care. 2014;19:145–56.PubMedCrossrefGoogle Scholar

  • [55]

    Pinquart M. Body image of children and adolescents with chronic illness: a meta-analytic comparison with healthy peers. Body Image. 2013;10:141–8.CrossrefPubMedGoogle Scholar

  • [56]

    Quinn GP, Gonçalves V, Sehovic I, Bowman ML, Reed DR. Quality of life in adolescent and young adult cancer patients: a systematic review of the literature. Patient Relat Outcome Meas. 2015;6:19–51.Google Scholar

  • [57]

    Sentenac M, Arnaud C, Gavin A, Molcho M, Gabhainn SN, Godeau E. Peer victimization among school-aged children with chronic conditions. Epidemiol Rev. 2012;34:120–8.CrossrefPubMedGoogle Scholar

  • [58]

    Silva N, Carona C, Crespo C, Canavarro MC. Quality of life in pediatric asthma patients and their parents: a meta-analysis on 20 years of research. Expert Rev Pharmacoecon Outcomes Res. 2015;15:499–519.CrossrefPubMedGoogle Scholar

  • [59]

    Carona C, Moreira H, Silva N, Crespo C, Canavarro MC. Social support and adaptation outcomes in children and adolescents with cerebral palsy. Disabil Rehabil. 2014;36:584–92.PubMedCrossrefGoogle Scholar

  • [60]

    Moreira H, Carona C, Silva N, Frontini R, Bullinger M, Canavarro MC. Psychological and quality of life outcomes in pediatric populations: a parent-child perspective. J Pediatr. 2013;163:1471–8.CrossrefPubMedGoogle Scholar

  • [61]

    Rassart J, Luyckx K, Apers S, Goossens E, Moons P. Identity dynamics and peer relationship quality in adolescents with a chronic disease: the sample case of congenital heart disease. J Dev Behav Pediatr. 2012;33:625–32.CrossrefPubMedGoogle Scholar

  • [62]

    Vetter TR, Bridgewater CL, Mcgwin G. An observational study of patient versus parental perceptions of health-related quality of life in children and adolescents with a chronic pain condition: who should the clinician believe?. Health Qual Life Outcomes. 2012;10:85.CrossrefPubMedGoogle Scholar

  • [63]

    Wang J, Wang Y, Wang LB, Xu H, Zhang XL. A comparison of quality of life in adolescents with epilepsy or asthma using the Short-Form Health Survey (SF-36). Epilepsy Res. 2012;101:157–65.PubMedCrossrefGoogle Scholar

  • [64]

    The DISABKIDS Group Europe. The DISABKIDS Questionnaires: Quality of Life Questionnaires for Children with Chronic Conditions – Handbook. Germany, Lengerich: Pabst Science Publishers, 2006.Google Scholar

  • [65]

    Erickson E. The life cycle completed. New York, NY: Norton, 1982.Google Scholar

  • [66]

    Moher D, Liberati A, Tetzlaff J, Altman DG. PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Ann Intern Med. 2009;151:264–9.CrossrefPubMedGoogle Scholar

  • [67]

    Alba A, Uribe M, Hunter B, Monzón P, Ferrada C, Heine C, Health-related quality of life after pediatric liver transplant: single-center experience in Chile. Transplant Proc. 2013;45:3728–30.PubMedCrossrefGoogle Scholar

  • [68]

    Andres AM, Alameda A, Mayoral O, Hernandez F, Dominguez E, Martinez Ojinaga E, Health-related quality of life in pediatric intestinal transplantation. Pediatr Transplant. 2014;18:746–56.CrossrefPubMedGoogle Scholar

  • [69]

    Békési A, Török S, Kökönyei G, Bokrétás I, Szentes A, Telepóczki G. Health-related quality of life changes of children and adolescents with chronic disease after participation in therapeutic recreation camping program. Health Qual Life Outcomes. 2011;9:43.PubMedCrossrefGoogle Scholar

  • [70]

    Cortina S, McGraw K, deAlarcon A, Ahrens A, Rothenberg ME, Drotar D. Psychological functioning of children and adolescents with eosinophil-associated gastrointestinal disorders. Child Health Care. 2010;39:266–78.CrossrefPubMedGoogle Scholar

  • [71]

    Elsenbruch S, Schmid J, Lutz S, Geers B, Schara U. Self-reported quality of life and depressive symptoms in children, adolescents, and adults with Duchenne muscular dystrophy: a cross-sectional survey study. Neuropediatrics. 2013;44:257–64.CrossrefPubMedGoogle Scholar

  • [72]

    Haverman L, Grootenhuis MA, van den Berg JM, van Veenendaal M, Dolman KM, Swart JF, Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: results from a Web-based survey. Arthritis Care Res (Hoboken). 2012;64:694–703.PubMedCrossrefGoogle Scholar

  • [73]

    Herzer M, Denson LA, Baldassano RN, Hommel KA. Patient and parent psychosocial factors associated with health-related quality of life in pediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2011;52:295–9.CrossrefPubMedGoogle Scholar

  • [74]

    Mellion K, Uzark K, Cassedy A, Drotar D, Wernovsky G, Newburger JW, Health-related quality of life outcomes in children and adolescents with congenital heart disease. J Pediatr. 2014;e1164:781–788.CrossrefPubMedGoogle Scholar

  • [75]

    Olsen BT, Ganocy SJ, Bitter SM, Findling RL, Case M, Chang K, Health-related quality of life as measured by the child health questionnaire in adolescents with bipolar disorder treated with olanzapine. Compr Psychiatry. 2012;53:1000–5.CrossrefGoogle Scholar

  • [76]

    Vanhalst J, Rassart J, Luyckx K, Goossens E, Apers S, Goossens L, Trajectories of loneliness in adolescents with congenital heart disease: associations with depressive symptoms and perceived health. J Adolesc Health. 2013;53:342–9.PubMedCrossrefGoogle Scholar

  • [77]

    Miranda Velasco MJ, Domínguez Martín E, Arroyo Díez FJ, Méndez Pérez P, González de buitrago amigo J. Health related quality of life in type 1 diabetes mellitus. An Pediatr (Barc). 2012;77:329–33.PubMedGoogle Scholar

  • [78]

    Williams C, Sharpe L, Mullan B. Developmental challenges of adolescents with type 1 diabetes: the role of eating attitudes, family support and fear of negative evaluation. Psychol Health Med. 2014;19:324–34.PubMedCrossrefGoogle Scholar

  • [79]

    Zashikhina A, Hagglof B. Health-related quality of life in adolescents with chronic physical illness in northern Russia: a cross-sectional study. Health Qual Life Outcomes. 2014;12:12.PubMedCrossrefGoogle Scholar

  • [80]

    Mokkink LB, Van der Lee JH, Grootenhuis MA, Offringa M, Heymans HS. Defining chronic diseases and health conditions in childhood (0–18 years of age): national consensus in the Netherlands. Eur J Pediatr. 2008;167:1441–7.CrossrefPubMedGoogle Scholar

  • [81]

    WHO. The Ottawa Charter for health promotion. Geneva: WHO, 1986.Google Scholar

  • [82]

    WHO. Global status report on noncommunicable diseases 2014. Geneva, Switzerland: WHO, 2014.Google Scholar

  • [83]

    Suris JC, Rutishauser C, Akré C. Does talking about it make a difference? Opinions of chronically ill young adults after being transferred to adult care. Arch Pediatr. 2015;22:267–71.PubMedGoogle Scholar

  • [84]

    Kovacs AH, Sears SF, Saidi AS. Biopsychosocial experiences of adults with congenital heart disease: review of the literature. AHJ. 2005;150:193–201.CrossrefPubMedGoogle Scholar

  • [85]

    Silva N, Crespo C, Carona C, Bullinger M, Canavarro MC. Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma. Child Care Health Dev. 2015;41:112–21.CrossrefPubMedGoogle Scholar

  • [86]

    Zhang W, Creswell J. The use of “mixing” procedure of mixed methods in health services research. Med Care. 2013;51:e51–7.CrossrefGoogle Scholar

  • [87]

    Fegran L, Hall EO, Uhrenfeldt L, Aagaard H, Ludvigsen MS. Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: a qualitative metasynthesis. Int J Nurs Stud. 2014;51:123–35.CrossrefGoogle Scholar

  • [88]

    Maslow GR, Chung RJ. Systematic review of positive youth development programs for adolescents with chronic illness. Pediatrics. 2013;131:e1605–18.PubMedCrossrefGoogle Scholar

  • [89]

    Wu YP, Geldhof GJ, Roberts MC, Parikshak S, Amylon MD. Initial examination of a new questionnaire assessing perceived social support in summer camp and home environments for children with cancer and their siblings. Child Health Care. 2013;42:67–84.CrossrefGoogle Scholar

  • [90]

    Morgan A, Davies M, Ziglio E. Health assets in a global context: theory methods action 2010 New York, NYSpringer.Google Scholar

  • [91]

    Morgan A, Ziglio E. Revitalising the evidence base for public health: an assets model. Glob Health Promot. 2007;14:17–22.Google Scholar

  • [92]

    Helgeson VS, Reynolds KA, Siminerio LM, Becker DJ, Escobar O. Cognitive adaptation theory as a predictor of adjustment to emerging adulthood for youth with and without type 1 diabetes. J Psychosom Res. 2014;77:484–91.PubMedCrossrefGoogle Scholar

  • [93]

    Gois CJ, Ferro AC, Santos AL, Sousa FP, Ouakinin SR, Do Carmo I, Psychological adjustment to diabetes mellitus: highlighting self-integration and self-regulation. Acta Diabetol. 2012;49(Suppl 1):S33–40.CrossrefPubMedGoogle Scholar

  • [94]

    Marmot M. Health equity: the challenge. Aust N Z J Public Health. 2012;36:513–4.PubMedCrossrefGoogle Scholar

About the article

Received: 2017-02-25

Accepted: 2017-05-10

Published Online: 2017-11-23

Ethics approval and consent to participate: None sought.

Competing interests: The authors declare no further financial interests or potential conflicts of interest.

Funding: T. Santos was supported by a PhD grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: reference SFRH/BD/82066/2011) and is supported by a Pos Doc Grant from the Portuguese Foundation for Science and Technology (FCT) and the William James Center for Research, ISPA - Instituto Universitário (Grant Number: reference WJCR_3BPD_001_2017). The William James Center for Research, ISPA - Instituto Universitário is supported by a grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: UID/PSI/04810/2013).

Author’s contributions: TS and MGM coordinated and conceived the study and design, developed a systematic review protocol, drafted and authored the manuscript. TS and MGM conducted the bibliographic search, the screening of titles/abstracts and the extraction and codification of data from all studies. Study outcomes were summarized by TS and MGM participated in interpretation of data and helped to draft manuscript revisions. CS, IL and MCM participated in the study design, interpretation of the data, and helped to draft significant manuscript revisions. All authors have read and approved the final manuscript.

Citation Information: International Journal of Adolescent Medicine and Health, Volume 31, Issue 4, 20170037, ISSN (Online) 2191-0278, DOI: https://doi.org/10.1515/ijamh-2017-0037.

Export Citation

©2019 Walter de Gruyter GmbH, Berlin/Boston.Get Permission

Supplementary Article Materials

Citing Articles

Here you can find all Crossref-listed publications in which this article is cited. If you would like to receive automatic email messages as soon as this article is cited in other publications, simply activate the “Citation Alert” on the top of this page.

Catherine A. Rowe, Fuschia M. Sirois, Loren Toussaint, Niko Kohls, Eberhard Nöfer, Martin Offenbächer, and Jameson K. Hirsch
Psychology, Health & Medicine, 2019, Volume 24, Number 8, Page 962
Hiba Abujaradeh, Reema Safadi, Susan M. Sereika, Cecilia T. Kahle, and Susan M. Cohen
Journal of Pediatric Health Care, 2018

Comments (0)

Please log in or register to comment.
Log in