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International Journal of Adolescent Medicine and Health

Editor-in-Chief: Merrick, Joav

Editorial Board: Birch, Diana ML / Blum, Robert W. / Greydanus, MD, Dr. HC (Athens), Donald E. / Hardoff, Daniel / Kerr, Mike / Levy, Howard B / Morad, Mohammed / Omar, Hatim A. / de Paul, Joaquin / Rydelius, Per-Anders / Shek, Daniel T.L. / Sher, Leo / Silber, Tomas J. / Towns, Susan / Urkin, Jacob / Verhofstadt-Deneve, Leni / Zeltzer, Lonnie / Tenenbaum, Ariel


CiteScore 2018: 0.79

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Volume 31, Issue 4

Issues

(Health-related) quality of life and psychosocial factors in adolescents with chronic disease: a systematic literature review

Teresa Santos
  • Corresponding author
  • William James Center of Research, ISPA-Instituto Universitário, Ciências Psicológicas, Sociais e da Vida, Rua Jardim do Tabaco, no 34, 1149-041 Lisboa, Portugal, Phone: +351 218811700; Mobile: +351 966142393
  • FMH, Faculdade de Motricidade Humana (Projecto Aventura Social-Social Adventure Team)/Universidade de Lisboa, Lisboa, Portugal
  • ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal
  • Email
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Margarida Gaspar de Matos
  • FMH, Faculdade de Motricidade Humana (Projecto Aventura Social-Social Adventure Team)/Universidade de Lisboa, Lisboa, Portugal
  • ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal
  • William James Center for Research, ISPA - Instituto Universitário, Lisboa, Portugal
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Celeste Simões
  • FMH, Faculdade de Motricidade Humana (Projecto Aventura Social-Social Adventure Team)/Universidade de Lisboa, Lisboa, Portugal
  • ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Isabel Leal / Maria do Céu Machado
  • FM, Faculdade de Medicina/Universidade de Lisboa, Lisboa, Portugal
  • Departamento de Pediatria do Hospital de Santa Maria, CAML, Centro Académico de Medicina de Lisboa, Lisboa, Portugal
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
Published Online: 2017-11-23 | DOI: https://doi.org/10.1515/ijamh-2017-0037

Abstract

Background

Research on living with a chronic disease (CD) in adolescence is increasing. However, studies on the relevance of psychosocial factors are still needed. The present review, focuses on the impact of living with a CD in adolescence on on quality of life (QoL), health-related quality of life (HRQoL) and psychosocial factors.

Methods

A literature review of articles identified through PubMed, PsycINFO and PsycARTICLES (these last two ones comprise the Ebsco Host platform) and original peer-reviewed research papers, published between 2010 and 2015, with no restrictions regarding the format/source of interventions, randomized controlled trials (RCTs) or types of comparisons were included.

Results

Eighteen papers met the inclusion criteria and contradictory results were found: the majority showed a significantly higher risk of impairment on QoL/HRQoL and psychosocial factors, whereas others reported a significantly lower risk of impairment (highlighting possible protective factors), or no significant differences. Heterogeneity in the assessment procedures and substantial difficulties in considering adolescence as a single and independent age group, were also noted.

Conclusion

The higher risk of impairment and the heterogeneity observed between cohorts, reinforce the need to work towards consensual procedures, which allow for more accurate comparisons among studies. Additionally, it conveys the challenge to find more effective interventions. Furthermore, it is highly suggested to routinely assess HRQoL/psychosocial factors within an individualized framework, to considerer adolescents as a single/independent group, to emphasize potential protective factors, and, to increase youth’s participation in their own adaptation process and in health promotion in general. These are possible future directions that could enable multidisciplinary responses to improve HRQoL and psychosocial care in adolescents with a CD.

This article offers supplementary material which is provided at the end of the article.

Keywords: adolescents; chronic disease; quality of life; health-related quality of life; psychosocial factors

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About the article

Received: 2017-02-25

Accepted: 2017-05-10

Published Online: 2017-11-23


Ethics approval and consent to participate: None sought.

Competing interests: The authors declare no further financial interests or potential conflicts of interest.

Funding: T. Santos was supported by a PhD grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: reference SFRH/BD/82066/2011) and is supported by a Pos Doc Grant from the Portuguese Foundation for Science and Technology (FCT) and the William James Center for Research, ISPA - Instituto Universitário (Grant Number: reference WJCR_3BPD_001_2017). The William James Center for Research, ISPA - Instituto Universitário is supported by a grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: UID/PSI/04810/2013).

Author’s contributions: TS and MGM coordinated and conceived the study and design, developed a systematic review protocol, drafted and authored the manuscript. TS and MGM conducted the bibliographic search, the screening of titles/abstracts and the extraction and codification of data from all studies. Study outcomes were summarized by TS and MGM participated in interpretation of data and helped to draft manuscript revisions. CS, IL and MCM participated in the study design, interpretation of the data, and helped to draft significant manuscript revisions. All authors have read and approved the final manuscript.


Citation Information: International Journal of Adolescent Medicine and Health, Volume 31, Issue 4, 20170037, ISSN (Online) 2191-0278, DOI: https://doi.org/10.1515/ijamh-2017-0037.

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Psychology, Health & Medicine, 2019, Volume 24, Number 8, Page 962
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Hiba Abujaradeh, Reema Safadi, Susan M. Sereika, Cecilia T. Kahle, and Susan M. Cohen
Journal of Pediatric Health Care, 2018

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