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International Journal of Adolescent Medicine and Health

Editor-in-Chief: Merrick, Joav

Editorial Board: Birch, Diana ML / Blum, Robert W. / Greydanus, MD, Dr. HC (Athens), Donald E. / Hardoff, Daniel / Kerr, Mike / Levy, Howard B / Morad, Mohammed / Omar, Hatim A. / de Paul, Joaquin / Rydelius, Per-Anders / Shek, Daniel T.L. / Sher, Leo / Silber, Tomas J. / Towns, Susan / Urkin, Jacob / Verhofstadt-Deneve, Leni / Zeltzer, Lonnie / Tenenbaum, Ariel


CiteScore 2018: 0.79

SCImago Journal Rank (SJR) 2018: 0.350
Source Normalized Impact per Paper (SNIP) 2018: 0.476

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2191-0278
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Perspectives on the use of a health surveillance system for Guatemalan youth: a stakeholder analysis

Sarah A. Golub
  • Corresponding author
  • Division of Adolescent/Young Adult Medicine, Boston Children’s Hospital, Boston, MA, USA
  • Department of Pediatrics, Harvard Medical School, Boston, MA, USA
  • Division of Adolescent Medicine, Seattle Children’s Hospital, Seattle, WA, USA
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  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Juan Carlos Maza Reyes
  • Departamento Pediatria Adolescentes, Hospital San Juan De Dios, Guatemala City, Guatemala
  • School of Medicine, Universidad de San Carlos de Guatemala, Guatemala City, Guatemala
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ David N. Williams
  • Department of Pediatrics, Harvard Medical School, Boston, MA, USA
  • Institutional Centers for Clinical and Translational Research, Boston Children’s Hospital, Boston, MA, USA
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Sinead Christensen
  • Institutional Centers for Clinical and Translational Research, Boston Children’s Hospital, Boston, MA, USA
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
/ Andrea Reyes Lopez / Claudia Lopez / Erwin Calgua / Areej Hassan
  • Division of Adolescent/Young Adult Medicine, Boston Children’s Hospital, Boston, MA, USA
  • Department of Pediatrics, Harvard Medical School, Boston, MA, USA
  • Other articles by this author:
  • De Gruyter OnlineGoogle Scholar
Published Online: 2019-05-24 | DOI: https://doi.org/10.1515/ijamh-2018-0262

Abstract

In Guatemala, adolescent health indicators are collected using the Sistema Informático del Adolescente (SIA), a clinical survey developed by the Pan-American Health Organization. Recent analysis revealed significant gaps in data, limiting the ability of clinicians and policy makers to effectively address health disparities. Our objective was to explore adolescent health stakeholders’ perceptions of the SIA. We conducted semi-structured interviews with 22 clinic personnel recruited from six adolescent health clinics throughout Guatemala. Stakeholders included multi-disciplinary providers and key database personnel. Interviews were conducted in Spanish, recorded and transcribed; a coding scheme was developed using a phenomenological approach, and Dedoose was used for analysis. Four major themes emerged: (1) Collecting baseline adolescent health data was useful for prevention, diagnosis and treatment of adolescent health issues. (2) The SIA was instrumental in streamlining clinical care and informing the psychosocial needs of patients. (3) The questionnaire was time-intensive, repetitive and often problematic for data input/extraction. (4) Condensing the survey and using a web-based version may improve the system for future use. Our findings show that despite the use of a standardized system, multiple barriers contribute to gaps in comprehensive data collection in Guatemala. Refining the system may enhance adolescent health surveillance and improve quality of care in this vulnerable population.

Keywords: adolescent health; Guatemala; health surveillance systems

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About the article

aCo first-authors.

bDr. Golub is currently a faculty member in the Division of Adolescent Medicine at Seattle Children’s Hospital.

cCo-senior authors.


Received: 2018-11-20

Accepted: 2019-02-19

Published Online: 2019-05-24


Funding Source: Adolescent/Young Adult Health

Award identifier / Grant number: HRSA/MCH LEAH #T71MC00009

Boston Children’s Hospital Division of Adolescent/Young Adult Health Gallagher Grant, Funder Id: http://dx.doi.org/10.13039/100007305, HRSA/MCH LEAH #T71MC00009.


Citation Information: International Journal of Adolescent Medicine and Health, 20180262, ISSN (Online) 2191-0278, DOI: https://doi.org/10.1515/ijamh-2018-0262.

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