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Journal of Pediatric Endocrinology and Metabolism

Editor-in-Chief: Kiess, Wieland

Ed. by Bereket, Abdullah / Darendeliler, Feyza / Dattani, Mehul / Gustafsson, Jan / Luo, Fei Hong / Mericq, Veronica / Ogata, Tsutomu / Toppari, Jorma

12 Issues per year


IMPACT FACTOR 2017: 1.086

CiteScore 2017: 1.07

SCImago Journal Rank (SJR) 2017: 0.465
Source Normalized Impact per Paper (SNIP) 2017: 0.580

Online
ISSN
2191-0251
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Volume 23, Issue 8

Issues

Genital Surgery for Disorders of Sex Development: Implementing a Shared Decision-Making Approach

Katrina Karkazis / Anne Tamar-Mattis / Alexander A. Kon
  • Department of Pediatrics and the Program in Bioethics at the University of California Davis, Sacramento, CA, USA
  • Other articles by this author:
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Published Online: 2010-09-17 | DOI: https://doi.org/10.1515/jpem.2010.129

ABSTRACT

Ongoing controversy surrounds early genital surgery for children with disorders of sex development, making decisions about these procedures extraordinarily complex. Professional organizations have encouraged healthcare providers to adopt shared decision-making due to its broad potential to improve the decision-making process, perhaps most so when data are lacking, when there is no clear “best-choice” treatment, when decisions involve more than one choice, where each choice has both advantages and disadvantages, and where the ranking of options depends heavily on the decision-maker's values. We present a 6-step model for shared decision-making in decisions about genital surgery for disorders of sex development: 1) Set the stage and develop an appropriate team; 2) Establish preferences for information and roles in decision-making; 3) Perceive and address emotions; 4) Define concerns and values; 5) Identify options and present evidence; and 6) Share responsibility for making a decision. As long as controversy persists regarding surgery for DSD, an SDM process can facilitate the increased sharing of relevant information essential for making important health care decisions.

KEY WORDS: (MeSH): decision-making; sex differentiation disorders; Hermaphroditism; urogenital surgical procedures

About the article

Corresponding author: Katrina Karkazis, PhD, MPH,


Published Online: 2010-09-17

Published in Print: 2010-08-01


Citation Information: Journal of Pediatric Endocrinology and Metabolism, Volume 23, Issue 8, Pages 789–805, ISSN (Online) 2191-0251, ISSN (Print) 0334-018X, DOI: https://doi.org/10.1515/jpem.2010.129.

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